Here is a short directory of national disability charities and services. Click on the organisation’s title or logo to visit their website.
If you know of an organisation that you would like us to show on this page, then please contact us via our Facebook page.
Support, information, advice, contacts, workshops to support your child’s talking and listening skills, your legal rights, education and the SEN system.
The CEA Card is a national card scheme developed for UK cinemas by the UK Cinema Association (UKCA), formerly the Cinema Exhibitors’ Association (CEA). The scheme was introduced in 2004 and is one of the ways for participating cinemas to ensure they make reasonable adjustments for disabled guests when they go to the cinema; in particular it ensures a complimentary ticket for someone to go with them.
We’re the charity dedicated to helping families with children with brain conditions discover a better life together.
We provide information, advice and support. We bring families together so they can support each other. We campaign to improve their circumstances, and for their right to be included and equal in society.
The umbrella body for the disabled children’s sector in England.
UK charitable organization that aims to help people with Down’s syndrome to live full and rewarding lives. Includes news and information on the condition – to help you separate the facts from some common misconceptions – plus links to local support groups and a helpline, where you can speak to specialist advisors.
Epilepsy Action exists to improve the lives of everyone affected by the condition. As a member-led association, we are led by and represent people with epilepsy, their friends, families and healthcare professionals.
Through our cutting edge research, awareness campaigns, information resources and expert care, we work for everyone affected by epilepsy in the UK.
The UK’s largest charity providing grants for families raising disabled or seriously ill children and young people. In 2016, we provided 89,423 grants or services worth over £36 million to families across the UK.
Funny Blood raises awareness of rare blood conditions called Platelet Function Disorders (PFDs), signposts information to support families living with the little-known condition and fundraises for the ongoing care of sufferers at the Haemophilia Unit in Birmingham Children’s Hospital.
IPSEA offers free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs (SEN) and disabilities.
IPSEA gives advice and support on:
- Local Authorities’ legal duties to assess and provide for children with special educational needs
- Exclusions of children with special needs/disabilities
- Action/inaction by Local Authorities and/or schools which discriminate against children and young people with disabilities.
We are a passionate group of people committed to changing the world for everyone with a learning disability. Find out more about what we do, why we do it and how we are run.
We provide information, support and pioneering services, and campaign for a better world for autistic people.
The membership body for organisations who specialise in providing for students with learning difficulties and disabilities.
SOS!SEN offers free, friendly, independent and confidential advice for parents and others looking for information and advice on Special Educational Needs and Disability (SEND) and Educational and Health Care Plans (EHCP). The service includes a telephone helpline for parents and others.
SOS!SEN concentrates on helping people to find their way through the legal and procedural maze which is so daunting to so many who try to obtain satisfactory provision for a child’s special needs.
The service also offers workshops and events, and there is a helpful page of information sheets, with advice on subjects ranging from EHCP itself to appealing decisions and challenging tribunal decisions.
Call SOS!SEN on 0300 302 3731 or 0208 538 3731
SWAN UK (syndromes without a name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.